no help in sight

Successful therapies were discontinued…

In Gießen and Hamburg, patients with variant D313Y were informed by phone or by mail that they will no longer receive therapy with immediate effect. It is no longer Fabry. The patients also developed health problems relatively quickly after the end of treatment, one patient was already in the emergency room….

We have been fighting for a long time for the recognition of the “controversial” variants, but that now successful therapies are discontinued is the worst thing that could happen.

But we are not giving up!